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User: DiamonDie |
A short CFS documentary A short documentary piece about a girl who lives with severe CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis) confined to her bed. Found on the Invest in ME website (I think). Note that in the worst cases CFS/ME can get so severe that the person is essentially paralyzed, has to be tube-fed, cannot speak and cannot even tolerate any light or sounds. I have written a book about CFS/ME/FM treatments titled "Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia". It features over 250 medications that can be used to treat these illnesses. For more information see http://www.brokenmarionettebook.com Tags: cfs me chronic fatigue syndrome myalgic encephalomyelitis documentary bedbound bedridden illness disability |
User: officialsleepydust |
M.E. / Chronic Fatigue Syndrome - Sleepydust Video The video aims to help the friends and family of ME/CFS (including Myalgic Encephalomyelitis (M.E.), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome) sufferers understand the illness and what their loved ones are going through. To view a clearer, larger version of the video, visit: http://www.sleepydust.net/me-cfs-chronic-fatigue-syndrome-video.html Tags: chronic fatigue syndrome m.e. cfs post viral illness cfids fibromyalgia fms |
User: luminescentfeeling |
ME/CFS - Doctors disbelief kills young woman 'Doctors' in the UK - ordered chronically sick ME CFS CFIDS patient Sophia Mirza to be removed from her home by force (breaking her front door down) and locked her in a mental asylum to 'treat her'. Days after returning home - she died. Those in power refused an autopsy and her death would thus have been covered up - had it not been for the intervention of her devoted and loving mother and a helpful MS (Multiple Sclerosis) specialist. No apology was given, no action was taken by the authorities towards those who did this to her. Her mother and family is left destroyed. The British Medical Association (BMA) who have the power to strike doctors off their lists for inhumane/damaging behaviour - did nothing. These 'Doctors'(by innapropriate medical intervention) effectively killed this woman in the name of a belief system. The 'belief' she was insane. Outside the medical profession, people who do this are called 'terrorists'. (Religion being a belief system). Despite the autopsy PROVING this young person died of an inflammatory immune disease - there is silence from the guilty and silence from those who can punish. Sophia Mirza's injust suffering is a prime example of the arrogance and ignorance of the British medical profession when it comes to this awful condition. Doctors to this day, STILL believe they are Gods - despite their privileged knowledge being increasingly opened up to the public. They are not Gods, but they are legally immune - hence their behaviour. This video post is in memory to her immense bravery her mother speaks of. May she rest in peace, and never be forgotten. For the TRUTH on what ME does to people, go to: http://www.meresearch.org.uk/ http://www.investinme.org http://www.cfsrf.com/ http://www.ahummingbirdsguide.com http://phoenix-cfs.org http://www.ahmf.org Tags: sophia mirza me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene fatigue testing kerr wessely health |
User: fastinggurl31 |
Chronic Fatigue Syndrome CFS I explain in more depth what is Chronic fatigue Syndrome and how it impacts my life Tags: chronic fatigue syndrome CFS |
User: fosforitooo |
CFS 2006 awaresnes Campaign CDC Awareness Campaign for Chronic Fatigue Syndrome 4million$ spent by US officials on research for treatment and causes... Tags: CFS CDC |
User: psychetruth |
Chronic Fatigue Syndrome - Clinical Nutrition Be My Friend - http://www.myspace.com/psychtruth Chronic Fatigue Syndrome - Clinical Nutrition An overview of Chronic Fatigue Syndrome and how clinical nutrition can be used to address the problem. symptoms: difficulty with sleeping, muscle and/or joint pain at multiple sites without evidence of inflammation, headaches, painful lymph nodes that are not pathologically enlarged, sore throat, cognitive dysfunction, worsening of symptoms by physical or mental exertion, general malaise, dizziness and/or nausea and palpitations with no identifiable heart problem. Dr. Vincent Bellonzi B.S.,D.C.,C.C.N., C.S.C.S., A.C.S.M. H/FI Dr. Vincent Bellonzi is a chiropractor and a Certified Clinical Nutritionist. He has been in practice for over 12 years. He received his Doctorate from Los Angeles College of Chiropractic in 1991. Since 1998, Dr. Bellonzi has practiced in the Austin area. He works with athletes at every level to provide sports conditioning and rehabilitation. Visit Dr. Bellonzi's website at http://www.bewellrx.com http://www.austinwellnessinstitute.com This video was produced by Psychetruth http://www.myspace.com/psychtruth http://www.youtube.com/psychetruth © Copyright 2007 Austin Wellness Institute. All Rights Reserved. Tags: chronic fatigue syndrome cfs nutrition tired sleep mental health cure fibromyalgia info about information truth |
User: COROchanArchive |
Japanese CFs 198X-1A 昭和六十年代の懐かしいＣＭ 昭和60年代物を中心とした懐かしＣＭです。 国鉄民営化、新電電などのほか、当時話題になった「禁煙パイポ」のＣＭも入っています。 Tags: CF CM コマーシャル 廣告 懐かし 昭和 高倉健 大魔神 JR 北海道 禁煙パイポ 小指 げんこつ寿司 新電電 どん兵衛 eos |
User: luminescentfeeling |
ME/CFS - A Hidden National Scandal Exposed Dr Kerr & the 'cure' that never was. No cure had been made available. Not due to Dr Kerr - but due to the blocking of funds to continue his work. (As has happened to Dr Gow) - another genetic expert from Scotland who is also finding things in this illness that people don't want to hear. I wonder why? Not that they have anything to hide or anything, no...... This is an edited (for time) clip of a Meridian TV news item that appeared on our screens over here in England,UK in 2005. Meridian TV should be applauded for having the bravery to broadcast this - it was NOT broadcasted nationally to protect the Government from shame and being asked questions - obviously. Consequently, only a few people saw it. Even after this ground breaking genetic discovery was broadcast the UK Government stil continue to block funding for research and a diagnostic test for ME/CFS. In 2008, not one ME/CFS clinic exists in the UK. All money is still going to psychiatry and the 'Wessely School' - despite M.E being recognised as a neurological illness by the World Health Organisation (W.H.O) since 1969. This flow of money is blocked by the MRC (Medical Reseach Council) who are influenced by the insurance industry - who have too much to loose to open the flood gates with 100,000's of thousands of patients making disability claims. The truth on ME/CFS is thus kept tightly shut. Doctors, civil servants and the general public -still have no idea that ME can be fatal. All we hear about is 'recovered' CFS patients in the newspaper - who 'recover' by taking anti-depressants and deciding they weren't actually ill after all. As you may know, the 'recovery' rate for ME is around 2%. Meaning 98% of people do not recover. Despite this, the british media rarely print articles on the severely chronically sick and instead focus on the mentally ill. These mentally ill people are 'volunteered' towards the media by bogus CFS charities. These charities are funded by the national lottery (Lotto) and extra government funding - to push a psychiatric agenda. The UK Government, and the BMA (British Medical Association) are thus a disgrace - as are bogus CFS patients, bogus CFS charities and the corrupt and evil Psychiatrits who prey on desperately ill patients. The NHS website in the UK claims 'most' people get better, and that this illness may 'last for months'. This is surely immoral? Promising people with viraly induced brain stem/ cardiac damage/DNA damage a cure with CBT/GE - graded exercise and behavioural therapy! For the TRUTH on what ME does to people, go to: http://www.meresearch.org.uk/ http://www.investinme.org http://www.cfsrf.com/ http://www.investinme.org http://www.ahummingbirdsguide.com http://phoenix-cfs.org http://www.ahmf.org Tags: me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene genetic testing test kerr wessely health |
User: COROchanArchive |
Japanese CFs 1988 落合信彦左衛門のＣＭ It is a spot commercial in the baseball news program of Japan. 『プロ野球ニュース』内のCMです。某麦酒会社を救った商品のＣＭが入っています。 Tags: CF CM コマーシャル 廣告 懐かし 昭和 佐川急便 Wagner Asahi beer アサヒビール ドライ 落合信彦 ヨコハマタイヤ 空耳 聽錯 Mishearing |
User: AHummingbirdsGuide |
Why 'CFS' is a wastebasket diagnosis This video explains why every diagnosis of 'CFS' based on any of the CFS definitions is ALWAYS a misdiagnosis and why the bogus disease category of 'CFS' must be abandoned. For the benefit of all of the patient groups involved, doctors must return to the age-old medical principals of correct diagnosis (a) careful history, (b) detailed physical examination and (c) appropriate investigation. As Dr Byron Hyde MD explains: 'Although the authors of these definitions have repeatedly stated that they are defining a syndrome and not a specific disease, patient, physician, and insurer alike have tended to treat this syndrome as a specific disease or illness, with at times a potentially specific treatment and a specific outcome. This has resulted in much confusion. Thirty years ago when a patient presented to a hospital clinic with unexplained fatigue, any medical school physician would have told the students to search for an occult malignancy, cardiac or other organ disease, or chronic infection. The concept that there is an entity called chronic fatigue syndrome has totally altered that essential medical guideline. Patients are now being diagnosed with CFS as though it were a disease. It is not. It is a patchwork of symptoms that could mean anything.' It is important to be aware that Myalgic Encephalomyelitis and 'CFS' are not synonymous terms and should not be used interchangeably, and that 'fatigue' is not a defining feature of M.E. nor even an essential symptom of M.E. CFS was created in the 1980s in the US in response to an outbreak of what was unmistakably M.E., but this new name and definition did not describe the known signs, symptoms, history and pathology of M.E. It described a disease process that did not, and could not exist. The fact that a person qualifies for a diagnosis of 'CFS' (a) does not mean that the patient has Myalgic Encephalomyelitis (M.E.), and (b) does not mean that the patient has any other distinct and specific illness named 'CFS.' Every diagnosis of CFS -- based on any of the CFS definitions -- can only ever be a misdiagnosis. The bogus disease category of 'CFS' has undoubtedly been used to impose a false psychiatric paradigm of M.E. by allying it with various psychiatric fatigue states and various unrelated fatigue syndromes for the benefit of insurance companies and various other organisations and corporations which have a vested financial interest in how these patients are treated, including the government. The distinction must be made between terminology and definitions. For more information on all aspects of M.E. see: http://www.ahummingbirdsguide.com/whatisme.htm Tags: Myalgic Encephalomyelitis CFS CFIDS CFS/ME ME/CFS activism advocacy severe |
User: ciyang |
Dreams -- Ju Ji Hoon's CFs This MV contains most of his CFs and recent interviews (Bon, Clride). Download: 1. 720X480, 65MB http://www.blueseashell.com/mv/dreams.wmv 2. 320X240, 21MB http://www.blueseashell.com/mv/dreams-320.wmv Tags: Ju Ji Hoon 朱智勋 주지훈 |
User: COROchanArchive |
Japanese CFs 198X-2 別な昭和六十年代の懐かしいＣＭ 昭和60年代物を中心とした懐かしＣＭです。 猿の「チョロ松」が出ているウォークマンから、バブルならではの素頓狂な作品まで揃っております。 I hope the response about dressing. Tags: CF CM コマーシャル 廣告 懐かし 昭和 Walkman お猿さん 金子信雄 yakuza リード21 生豆 タケダ 高倉健 日生 fujita 冷蔵庫 |
User: COROchanArchive |
Japanese CFs 1988-Sep 昭和六十三年・車だらけの懐かしいＣＭ（再） It is a spot commercial in 1988. Which car is favorite? なぜか車が多くでる、昭和63年9月に放映されたスポットＣＭです。 おまけにアノ人物が出演する洗車ワックスのＣＭまであります。 * In present Japan,Cigarette CM is not telecasted. Tags: CF CM コマーシャル 廣告 昭和 懐かし 1988 車 car HI-C 井上陽水 高松英郎 さんま しのぶ |
User: fogggygyrl |
The Realities of ME/CFS The facts about ME/CFS in this video were taken from many different ME/CFS organizations that are on the Web. ME/CFS can range from mild to severe in patients. It is estimated that 25% of ME/CFS patients suffer from a severe form of the illness and are completely disabled by it. This is a physical illness and is not psychological. Tags: Chronic Fatigue Syndrome CFS CFIDS Myalgic Encephalomyelitis ME Disability Illness Mad World Gary Jules |
User: COROchanArchive |
Japanese CFs 198X-1B 昭和六十年代の懐かしいＣＭ 二軍 It is a commercial telecasted in chiefly 1980s. 昭和60年代物を中心とした懐かしＣＭです。 目立つものはありませんが、なかなか趣のある作品が揃っております。 Tags: CF CM コマーシャル 廣告 懐かし 昭和 ＳＬ 掃除 戦国時代 稲川淳二 洗剤入り ドイツ ビール 猫 ネコ夢中 タンスにゴン セーラー服 ちあきなおみ |
User: obscenely |
Natalie for CFS/ME Awareness My scattered (in true CFS/ME style) run down & story of CFS/ME for CFS/ME awareness day (May 12). & yes, I was exhausted after recording this. Tags: CFS ME CFIDS Chronic Fatigue Syndrome Myalgic Encephalomyelitis Melbourne Health Awareness May 12 |
User: leia555leia |
Chronic Fatigue Syndrome entry for PANDORA international video advocacy contest Tags: Chronic Fatigue Syndrome CFS P.A.N.D.O.R.A. |
User: COROchanArchive |
Japanese CFs 1987-C 昭和六十二年の懐かしいＣＭ It is a commercial telecasted in chiefly 1987. おもに昭和62年に放映された懐かしいＣＭを集めました。 Tags: CF CM コマーシャル 廣告 懐かし 昭和 1987 HBC イオナ ホクレン SEIKO 南野陽子 花王 アタック ルナ |
User: luminescentfeeling |
ME/CFIDS/CFS - Medical Hate Speech 1) Family Doctors 'Despise' ME patients and we are 'bluffers'. 2) If a Doctor meets a patient who thinks they have ME - tell them to 'go away you piece of pond life, and pull yourself together'. 3) It is right that people describe Doctors as being 'Disgusted' by ME patients and that we are neurotic. 4) We should feel guilt and shame for having CFS. Brain scans shouldn't be performed because if an abnormality is found - this would involve time to look for it. 5) We don't deserve to have a disease label, because we aren't genuinely ill, no diagnostic tests should be performed and no referral should be made to a specialist. 6) ME/CFS doesn't exist and we are malingerers, but never to tell us this to our faces. The only cause of death is suicide. 7) It is 'perverse' that ME activists feel they have an illness that is also progressive or fatal like other diseases. 8) Claiming that a 'Virus' triggered ME is a 'classic' trait that we are mentally ill and hypochondriacs. Why? People that 'learn' to act in a helpless manner - also claim a Virus made them ill. 9) Having passionate feelings that we are physically ill and not mentally ill - just about sums up the average ME patient. 10) There is nothing wrong with our bodies, yet we reject the fact we are mentally ill -we are the undeserving sick of Society, and the NHS. 11) ME usually disappears in a few years. If anything is proven to be physically wrong with you, you don't have CFS/ME 12) We believe our muscles don't work so will need a Physio with 'attitude'. 13) In the majority CFS/ME can be treated through altering the way you think. It is our fault, that we keep ourselves ill - because we deny ourselves this treatment. 14) The Chief Medical Officer has forced Doctors to 'collude' with their ME patients under the self-deception that they have an illness called ME. 15) People who have allergies have no guilt of this and no ability to morally scorn themselves for being allergic. 'Outbreaks' of disease/allergies etc - are not new, because in the past people also saw Spirits & Demons. 16) If a Doctor 'validates' our illness (instead of denying it), then we will get 'priviledges' of the 'sick role' including money. A diagnosis of 'Depression' is more appropriate. 17) We are only 'ill' - to get money, and our illness is based on financial gain. ME serves as an ability to show society that we are 'distressed' people. 18) Behavioural therapy is 'acceptable' to us, it's safe - and better than other medical treatments. 19) Through graded exercise and making our symptoms worse, our symptoms will still go in a mater of weeks and it won't cause a relapse. 20) The majority of ME patients who are admitted to Hospital have, 'Sexual Problems'. 21) We avoid activity, because we are 'fearful' of it because we believe it will make use worse. 22) We need therapy. It allows us to agree to 'stop' pretending to be ill, without being embarrassed by admitting we were previously faking. 23) Behavioural Therapy is not a Psychiatric approach and most ME patients want to have confirmation that we have ME - rather than being told, we do not. 24) Our lives are pre-occupied with getting a diagnosis of ME and it's only a 'perception' of people that there are no services for people with ME in the medical sector, and these provisions are thin on the ground. Only a handful of patients have been made worse by graded exercise. 25) Doctors worry that although the Department of Social Security states that ME patients won't need help with mobility/bodily functions - they hope new laws wont' enforce this help. It would be a financial 'burden' on the state which is pointless as we can be 'rehabilitated' already. 26) We want a medical diagnosis because it allows us to do less, pressure our family/friends and employers - to do more for us. 27) We have 'pre-set' ideas about what makes us ill, and what makes us better - so we tend to be argumentative people for Doctors to deal with. 28) A non psychiatric label, allows us to have a legitimate reason to be sick, and this is bad as we then cost the Government/Insurance companies too much money. 29) Doing a TILT-TABLE test is a nasty experience for the patient, and thus because of this it would be 'un-ethical' for it to be done. Taking blood pressure conventionally is just as accurate. 30) That the Children's advisor to AYME - has never found a child or family that didn't want CBT. 31) Dr Mark Porter says we say he is part of an NHS conspiracy to stop getting treatment. 32) 90% of children, and 50% of adults make a FULL recovery and there is no evidence of drug hyper-sensitivity. 33) Doctors changed the diagnostic criteria for CFS because not enough mentally ill people were being diagnosed with CFS. 34) The core of CFS, is a twisted relationship between patient and doctor - not an immune disorder or Virus. Tags: me/cfs cfs/me cfids m.e cfs chronic fatigue syndrome myalgic encephalomyelitis psychiatry afme ayme nhs doh mrc pvfs |
User: luminescentfeeling |
ME/CFS - Doctors trained to neglect (part 2 of 4) Training video from the British Psychiatric profession to 'teach' family Doctors (GP) that ME/CFS CFIDS patients are mentally ill, are not suffering from a neurological/immune disease, and can thus be 'treated' with psychological interventions such as behavioural therapy (CBT), Graded Exercise (GE) and Pacing. --------------------------------------- Claims made in Part 2 of this video about ME/CFS include: 1) Doctors should avoid telling patients they are psychologically ill - to reduce alienation and 'arguments'. 2) Patients may think (that Doctors think) they have an undiagnosed cause to their illness, which in a patients mind is 'a bit silly'. 3) Telling a patient the phrase 'you seem to fulfil the criteria of CFS' is enough to diagnose them with CFS and will 'satisfy' the patient well enough. 4) Use a practical approach by using 'activity scheduling' - because an ME/CFS patient 'worries' about undertaking an activity and then 'feeling' they have to rest after. 5) ME/CFS patients have got themselves 'caught up in a vicious circle' which has lead them to become physically disabled. By altering these thought processes, patients will improve. 6) Tiredness and 'fatigue' are genuine, but patients need to undertake activity that will make them feel bad. Patients should increase activity even if they feel really bad - because as long as it is done in a 'structured' way it will help. 7) By 'gradually building up' activity it does not have the same effect on patients symptoms. 8) Takes just months of gradually building back up activity levels - to recover from ME/CFS. ' 9) Patients have got into a 'habit' of avoiding activity - so now symptoms are controlling them, rather than the patient being in control of the symptoms. 10) Patients need to write down hour by hour what they are doing in a 'detailed diary' - and report back to the doctor with these levels of activity. These activities are then 're-ordered' to become more consistent to break ME/CFS patients associations between symptoms and activity. 11) ME/CFS patients need to distinguish between factors that contributed to the 'problem in the first place' and factors that 'keep the problem going once it's started' - which are reducing activity because they are fearful of continuing activity incase it makes them worse. 12) Consistent sleep patterns have a 'dramatic' effect on ME/CFS patients symptoms and quickly start to feel less tired. --------------------------------------- N:B Although dated, this video is still distributed in 2008. N:B In 2002, Professor Sir Liam Donaldson (Chief Medical Officer for England/Wales) said: ''Patients suffer their symptoms being ignored, not being taken seriously, labelled as hypochondriacs, urged to pull themselves together.'' ''CFS/ME should be classed alongside other diseases such as multiple sclerosis and motor neurone disease''. --------------------------------------- Question: How then, is the psychiatric profession legally allowed to produce information like this - if they have been ordered by higher powers not to? Answer: Because this is what you think, because that would be the moral decision - to STOP disinformation that harms/kills patients. Politics is never moral. Public statements by Government ministers mean nothing - if they have a lot to lose by revealing the cause of ME/CFS. ME/CFS is a politicised illness because the Government know the cause. (Most likely Pesticides). Tags: me/cfs cfs/me myalgic encephalomyelitis me m.e cfids pvfs cfs gene genetic testing test kerr wessely health |
User: CFIDSgurl |
Chronic Fatigue Syndrome - CHANGE THE NAME (ME/CFS/CFIDS) CFS is a multi-system disease which causes extreme fatigue, muscle weakness, cognitive dysfunction, hypersensitivity, orthostatic intolerance, digestive disturbances, depression, poor immune response, and cardiac and respiratory problems. According to the CDC, studies show that disability in CFIDS patients is comparable to multiple sclerosis, AIDS, lupus, rheumatoid arthritis, heart disease, end-stage renal disease, and chronic obstructive pulmonary disease. Yet, studies have shown that patients diagnosed with "Chronic Fatigue Syndrome" are not taken as seriously as patients with the same symptoms but a different name for their diagnosis. Thus, the name CFS not only affects the quality of treatment patients receive, but the amount of money committed to research! PWCs deserve to be taken seriously, to have a name for their illness that preserves their dignity, and to receive appropriate medical care! Spread the message -- CFS: Change the Name! Tags: CFS ME Chronic Fatigue Syndrome CFIDS Myalgic Encephalitis |
User: GBCOne |
Wessely wants "Chronic Fatigue Syndrome" - ITN Will history judge Simon Wessely kindly? Tags: chronic fatigue syndrome myalgic encephalomyelitis cfs cfids itn itv 1996 90s L'encéphalomyélite Myalgique Vermoeidheids |
User: vinayiyer08 |
Cfs Day of action KNOW THE ISSUES, TAKE ACTION, STAY CONNECTED CFS day of action uploaded by http://www.theuwsa.ca Feb 7th is the National day of Action for increased Funding for Education and Lower Tuition Fees. On Feb 7, join thousands of students from across the country in support and defense of high quality, affordable and accessible education. We are calling for the progressive reduction of tuition and ancillary fees at public post-secondary institutions across the country; The elimination of differential fees for international students; New capital funding to our institutions; An increase in federal funding to post secondary education; An end to the exclusion of marginalized groups from post-secondary education Tags: Canadian federation of students cfs reduce tuition fees |
User: AHummingbirdsGuide |
Problems with 'our' M.E. (and CFIDS, ME/CFS) advocacy groups Unfortunately, while many advocacy groups started out doing excellent work to improve things for M.E. sufferers, today this is no longer true in most cases. So many of these groups which started out determined to fight against the 'fatigue' and 'CFS' psychobabble, and all the other financially and politically motivated propaganda, and now actively SUPPORTING it. It is very common to read information produced or supported by these groups which does not contain even a SINGLE facts about M.E., or about anything else. (At best, information on M.E. is mixed in randomly with information on 'CFS' as if they were one and the same). There are a small number of groups doing some good and worthwhile work for their members. Within that group there are a very small number of groups which really are virtually propaganda free and which do very clearly make the full and proper distinction between M.E. and CFS. Then there are the worst of the worst, the groups which support all of the worst psychobabble including graded exercise therapy (the most harmful 'treatment' for genuine M.E. there is, and the reason many with M.E. are so severely affected in the first place, or have DIED from M.E.). (These groups are the 'wolves in sheep's clothing'). This includes groups such as: AfME in the UK, the ME/Chronic Fatigue Syndrome Society of Victoria in Australia, and the CFIDS Association of America (CAA), among others. But the largest number of groups are somewhere in the middle. (These groups are the 'sheep'). They may or may not provide some small percentage of good information occasionally, but unfortunately they combine this with many times more propaganda/fatigue/CFS nonsense, so it's all rather confusing and just pointless in the end, despite any of the good intentions they may have (or claim/seem to have). But what is so maddening is that these groups are not only not helping people with M.E., they are also harming all those people misdiagnosed with 'CFS' to a similar degree. They help NOBODY. These comments do not just apply to a few rogue groups, unfortunately. They apply to almost all of them -- all around the world -- and virtually ALL the largest groups in each country. The number of 'advocate' groups -- and individual advocates -- not significantly or overwhelmingly affected is very small. We must fight to get these groups closed down, or at the very least these groups and individuals must be stopped from incorrectly and misleadingly claiming that they speak for (and provide facts on) authentic Myalgic Encephalomyelitis; as is happening so often now. These groups must stop hiding behind terms such as 'CFS' and 'ME/CFS' etc. and once and for all state clearly exactly who they are supposedly advocating for. These groups and individuals have caused enough needless extra suffering, abuse, neglect and DEATH. What is happening is a human rights travesty on a massive scale. This has to stop. It has to BE stopped. For more information on this topic see: http://www.ahummingbirdsguide.com/topicactivismgroups.htm For more information on all aspects of M.E. see: http://www.ahummingbirdsguide.com/whatisme.htm Acknowledgements: A big thank you to Claire Bassett for all the artwork in this video Tags: Myalgic Encephalomyelitis CFS CFIDS CFS/ME ME/CFS activism advocacy severe |
User: AHummingbirdsGuide |
'CFS' harms everyone, not just M.E. sufferers This video explains why it isn't just people with M.E. who are harmed by the creation of the bogus disease category of 'CFS' and why it harms everyone misdiagnosed with CFS. (Note that this is not about mere terminology, it is about the DEFINITIONS of 'CFS' not defining any distinct disease, including M.E., that is why every diagnosis of CFS is a MISdiagnosis.) Today patients with all sorts of different illnesses are commonly misdiagnosed as having 'CFS.' Under cover of the bogus disease category of CFS, this diverse mix of patients are treated as if they each suffered the exact same specific illness. This is clearly unscientific, and unethical. These patients must be given the opportunity to be diagnosed correctly if they are to have any chance of appropriate treatment or recovery, not given a meaningless 'CFS' misdiagnosis. Patients with M.E. need this same opportunity. Treating this diverse and heterogenous patient group as if their illnesses each shared the same symptoms, aetiology, pathology and response to treatment is inappropriate and highly unlikely to benefit the health and wellbeing of any of the patient groups involved. Treating this 'CFS' group as if they each shared a specific psychological or behavioural illness is also clearly inappropriate. Aside from representing a heterogenous patient group, many (likely the vast majority) of those with the diagnosis are not mentally ill, and do not suffer from behavioural problems. (This includes of course, those patients with authentic M.E.) Physicians who diagnose 'CFS' in any patient experiencing new onset fatigue without looking and testing for the true cause of the symptoms do their patients -- and themselves -- a great disservice. As Dr Elizabeth Dowsett explains, 'There is no such disease(s) as CFS' (b. [Online]) Some of the conditions commonly misdiagnosed as CFS are very well defined and well-known illnesses and very treatable -- but only once they have been correctly diagnosed. Some conditions are also very serious or can even be fatal if not correctly diagnosed and managed, including Myalgic Encephalomyelitis. Every patient deserves the best possible opportunity for appropriate treatment for their illness, and for recovery. This process must begin with a correct diagnosis if at all possible. A correct diagnosis is half the battle won. For more information on all aspects of M.E. see: http://www.ahummingbirdsguide.com/whatisme.htm Tags: Myalgic Encephalomyelitis CFS CFIDS CFS/ME ME/CFS activism advocacy severe |
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